KHI Current Project

Pediatric Clinical Trials: Making Them Family-Centric

Overview

Following a workshop co-led with NephCure on SGLT2 inhibitors, a Pediatric Workshop at the KHI Annual Meeting in 2023 and a KHI-sponsored session at Kidney Week 2023, key gaps were identified in educating families about clinical trial participation. In response, KHI launched a project to:

• Publish a comprehensive resource guide for patients and caregivers to support trial enrollment.
• Address industry challenges in clinical trial protocol analysis.
• Showcase successes in pediatric clinical trials through a future webinar.

There are currently three project working groups 1. Developing the resource guide for patients and caregivers to facilitate enrollment in clinical trials, 2. Addressing industry challenges in clinical trial protocol analysis through focus groups discussions, and 3. Showcasing successes in pediatric clinical trials through a future webinar.