Engaging the Patient Voice
Patient Organizations
Patient organizations who are KHI members play an important role in highlighting the patient perspective in drug and device development, supporting the work of the KHI PFPC, and advancing KHI's mission. Thank you to the following organizations for supporting the KHI PFPC:
- American Association of Kidney Patients
- American Kidney Fund
- Alport Syndrome Foundation
- Dutch Kidney Foundation
- Home Dialyzers United
- IgA Nephropathy Foundation of America
- JDRF International
- National Kidney Foundation
- NephCure Kidney International
- Oxalosis and Hyperoxaluria Foundation
- PKD Foundation
- Vasculitis Foundation
Resources
Read perspectives of KHI's work from people with kidney diseases in the KHI PFPC newsletter:
May 2018 September 2018 December 2018 March 2019
December 2019