Engaging the Patient Voice

Patient & Family Partnership Council (PFPC): Who We Are

Patients and their care partners are at the center of the KHI mission. The PFPC is a tangible representation of that commitment.

By providing a channel for patients to get involved in advising and making recommendations on priorities and projects, they are able to influence innovation in the kidney community and ensure the patient voice is heard in the development of clinical trials and development of new treatments.


To further patient involvement in KHI, the PFPC works closely with the Board of Directors and staff to advise and make recommendations on member project proposals, projects and overall efforts so that the patient's voice, experience and involvement is meaningful and effective. The PFPC is comprised of up to 10 members who are patients, families, care partners and/or patient organization staff and faculty.

2020 KHI PFPC Members

Announcements & Events

Stay Informed

As a public-private partnership with the US Food and Drug Administration, KHI works to include the patient voice in projects, workshops and product development. By filling out the form below, patients and care partners interested in KHI's work, receive access to:

  1. A newsletter and other communication via email regarding KHI and KHI PFPC activities
  2. Volunteer opportunities, such as workgroups, workshops, project feedback, and surveys
  3. Knowledge about future KHI and patient related activities

Join the Mailing List

Read the KHI PFPC Newsletter

Catch up on past editions of the KHI PFPC newsletter:

May 2018 September 2018 December 2018 March 2019

December 2019