Engaging the Patient Voice

People with kidney diseases and their care partners are at the center of the KHI mission.

The KHI Patient and Family Partnership Council (KHI PFPC) is one way KHI centers the patient perspective. By providing a channel for people with kidney diseases to get involved in advising and making recommendations on priorities and projects, the KHI PFPC is able to influence innovation in the kidney community and ensure the patient voice is heard in the development of clinical trials and development of new treatments.

Patient Organizations

Patient organizations who are KHI members play an important role in highlighting the patient perspective in drug and device development, supporting the work of the KHI PFPC, and advancing KHI's mission. Thank you to the following organizations for supporting the KHI PFPC:

Stay Informed

KHI strives to include the patient voice in projects, workshops and product development. By filling out the form below, patients and care partners interested in KHI's work can keep informed about volunteer opportunities and future patient related activities.

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Resources

Read perspectives of KHI's work from people with kidney diseases in the KHI PFPC newsletter:

May 2018 September 2018 December 2018 March 2019

December 2019