Anne Rohall-Andrade, JD
Anne is a Living Kidney Donor to her teenage daughter. Anne and her twin daughters suffered from a rare in-utero disease that affects identical twin pregnancies, “Twin to Twin Transfusion Syndrome” or TTTS. TTTS occurs when identical twins, who share a placenta, experience unequal blood flow in utero. The “recipient” twin receives too much amniotic fluid leading to heart failure and other complications. The “donor” twin develops with little to no amniotic fluid, often resulting in kidney disease after birth and other complications. TTTS is fatal without interventions. The twins were born at only 24 weeks and weighed a little over one pound at birth. Anne’s twin daughter with kidney disease also suffered from numerous medical conditions, including Cerebral Palsy. Both girls spent years in and out of the hospital, enduring numerous medical procedures including open-heart surgery. Anne has practiced disability and healthcare law for 25 years, in a variety of positions including law firms, nonprofits, and several Government Affairs roles where she has advocated for patients, families, and their caregivers on Capitol Hill. Her healthcare career began when she served as a law clerk to the U.S. Court of Federal Claims, specializing in vaccine cases. When her twins were born, Anne’s personal and professional lives collided, making her even more passionate about healthcare policy. She was working as counsel at the U.S. Department of Health and Human Services (HHS) when she got the call on her birthday that she was a match for her daughter. Following the transplant, Anne was assigned at HHS to work on the Advancing American Kidney Health Executive Order in partnership with the American Society of Nephrology (ASN), and the National Kidney Foundation (ASN), served as the HHS liaison to ASN’s KidneyX initiative, and acted as an advisor to the Centers for Medicare and Medicaid Services (CMS) on alternative payment models for kidney patients that advance value-based care and support patient access and quality care. After leaving federal service, Anne worked as the Director of Federal Policy and Engagement at Mayo Clinic, where she continued to advocate for innovation in kidney care, including diversity in clinical trials, addressing health inequities, educating Congress on the critical need to raise awareness of chronic kidney disease (CKD), and addressing social risk factors that are barriers to life-saving care. Currently, Anne is the Vice President of Government Affairs at Somatus, Inc., the nation’s leading and largest value-based kidney care company serving patients with CKD and End-Stage Renal Disease (ESRD). In this role, Anne continues her advocacy work with Congress and the public on behalf of patients with CKD and ESRD and their circles of support, bringing her experience and passion as a healthcare attorney, Living Donor, and mother to a teenager with CKD. She values her ongoing partnerships with ASN, NKF, and other healthcare organizations.