Kelly Helm is a kidney disease patient advocacy leader and caregiver to her young adult daughter who was diagnosed with Focal Segmental Glomerulosclerosis (FSGS) in 2009 at the age of 3. Searching for support herself, Kelly began forming kidney disease patient communities as a volunteer and then joined the staff of NephCure in 2011 where she spent more than a decade building impactful connections with rare kidney disease patient families and building patient support and educational programs. Her daughter Macy, has now been living with FSGS for more than 15 years, has experienced ESKD twice and has received two living kidney donor transplants from two amazing family friends. Kelly has built robust voice of patient programs ensuring that the patient perspective is included in the drug development process, including co-coordinating several Externally Led Patient Focused Drug Development meetings. She has published articles from the caregiver perspective in the Clinical Journal of the American Society of Nephrology about young adults transitioning to adult care and living kidney donation. She advocates on Capitol Hill for kidney disease legislation and research funding and participates in various advisory committees in the rare kidney disease space. Kelly is dedicated to the continued work of improving outcomes for kidney disease patients and supporting them throughout their journey.