Caroline Wilkie is a nocturnal home hemodialysis patient who is heavily involved in volunteer work with the National Kidney Foundation (NKF) as well as other organizations serving kidney patients. She writes a quarterly newsletter and runs a support group for home patients in her dialysis clinic as well as serving as the patient advocate. She volunteers at the local chapter of the NKF in her hometown of Charlotte, NC doing things such as assisting in planning fundraising events, procuring donations, and assisting with office work.
Caroline also works with the NKF PEERS program which is a telephone-based peer-support program that helps people adjust to living with chronic kidney disease, kidney failure, or a kidney transplant. She is also a member of the NKF’s Kidney Advocacy Committee (KAC) which is a group of more than 80 patients from 45 states who are personally affected by kidney disease. The KAC uses their experience to advice government agencies, research organizations, and policy and health organizations on kidney disease. She is also a member of the Kidney Health Initiative’s Patient and Family Partnership Council, serving on a KHI steering committee workgroup project entitled: Prioritizing Symptoms of ESRD Patients for Developing Therapeutic Interventions.